Monday, August 30, 2010

~LINK TO OUR MANITOULIN EXPOSITOR STORY~




I have been trying to share this link on facebook but it won't work for some reason?!  I have tested this link here and it did lead me to the story.  

Good luck, I hope it works for 
you!

Thanks to Michael Erskine for his time in interviewing Brendan and I, and for writing this story----very well written and thought provoking!  

Much thanks to Rick, his family, & the staff of the Manitoulin Expositor for sharing this story and for also providing us with our advertising for our event!



Love, Peace, & Nimkee Blessings to you all,
Melissa & family xxoo


  

~1st ANNUAL NIMKEE-BLESSINGS/INTRODUCING BENNETT BENEFIT CONCERT~LINE-UP INFO & UPDATES!!!




~**~NIMKEE BLESSINGS & INTRODUCING BENNETT~**~ are co-hosting a Benefit Concert on SUNDAY, SEPT 5th at Gordon's Park (18777 Hwy 6), Tehkummah, Manitoulin Island! 


We will have lots of great entertainment for young and old alike, & fun things for the kiddies to do! 


~ALL PROCEEDS go to helping families with babies in the SICK KIDS HOSPITAL NICU in Toronto, Ontario.


$10 for ages 15+ 
$5 for children 5-15 
FREE for children 4 & under  


FEATURING

  •  2-2:30 Introducing Bennett (Brendan, Pete, Jason, Tedd) 
  •  2:30-3 Tedd Jensen 
  •  3-4 Pat Peltier 
  •  4-4:30 Leslie Neshkiwe 
  •  4:30-5:30 Dave Southwood & Darren Madahbee 
  •  5:30-6 Digger Wyman 
  •  6-7 Brand New Eyes (Brendan, Jason, Cindy, Justin, Matt) 
  •  7-7:30 Damien Thibodeau 7:30-8 CJ, Brendan, and probably Jason! 
  •  8-9 Low Guns (Luke Sellen & Dwayne Trudeau) 
  •  9-9:30 CRYPT (Michael Stevenson)
  •  9:30-10 Introducing Bennett (Brendan, Pete, Jason, Tedd)



NEWS UPDATE:
WE ALSO HAVE A MAGICIAN FOR THE KIDS!!!


Children's activities so far:



  • Face painting
  • Rock painting--make something for the garden!
  • Colouring & Drawing station--will have a display board to showcase art!
  • Playground
  • Bubbles
  • For a park fee: Mini-putt, heated swimming pool WITH ADULT SUPERVISION for anyone under 16
  • Nimkee Blessings Corn Roast
  • BBQ w funds going to The Manitoulin Islanders---come on out and support your local team!!!
  • Bake Table!

Monday, August 16, 2010

~1st ANNUAL NIMKEE-BLESSINGS/INTRODUCING BENNETT BENEFIT CONCERT~


Benefit Concert at Gordon’s Park (18777 Hwy 6)


Sunday, September 5th
2pm-10pm

ALL PROCEEDS go to helping families with babies in the SICK KIDS HOSPITAL NICU in Toronto, Ontario

Great entertainment and activities for young and old alike!

Camping-tipi/tent, cabins, heated pool, 18-hole mini-put--13 mins from the Chi-cheemaun ferry!

Tickets will be sold in advance and at the door. If you cannot make it, please considering purchasing a ticket as a donation for this very worthy project!

$10 for ages 16+
$5 for children 5-15
FREE for children under 4

Featuring:
Introducing Bennett:
Brendan Pinand, Jason Girdwood, Peter Jones,
& Tedd Jensen

Brand New Eyes:
 Cindy Thornton, Justin Lussier, Matt Bond,
Jason Girdwood, & Brendan Pinand

LOW GUNS:
Dwayne Trudeau & Luke Sellen

Tedd Jensen

Dave Southwood

Leslie Neshkiwe

& More

Food provided by The Manitoulin Islanders-come on out and support our local team!
*This is a family event; please no alcohol, drugs, or dogs!
**Bring your own lawn chair.
For more information:
 Please contact Melissa Roy @ (705) 370-1583 or email nimkee.blessings@gmail.com
Or visit our Website at: www.nimkee-blessings.blogspot.com




Tuesday, August 10, 2010

~The story behind WHY *~Nimkee Blessings~* is so inspired to host this BENEFIT CONCERT~

~**~NIMKEE BLESSINGS & INTRODUCING BENNETT~**~will be hosting a benefit concert at Gordon's Park on beautiful Manitoulin Island...SUNDAY, SEPT 5th! We will have lots of great entertainment for young and old alike, & fun things for the kiddies to do!


~Featured artists include:  Introducing Bennett, Brand New Eyes, Low Guns, Tedd Jensen, Leslie Nishkiwe, Dave Southwood, CJ, Damien T, Michael S---& more to be announced---if you wanna play us a tune---some on out and join us, we'd love to have you!!


~Advance tickets will be sold. If you cannot make it, please consider it as a donation to this very worthy project.
$10 for ages 16+
$5 for children 5-15
FREE for children under 4



~ALL PROCEEDS go towards helping families with babies in the SICK KIDS HOSPITAL NICU in Toronto, Ontario.


Gordon's Park Eco-Resort is located: (from website)
~15 minutes from the Chi-Cheemaun Ferry Terminal. The Ferry sails May - October from Tobermory on the Bruce Peninsula to South Baymouth on Manitoulin Island.
~Gordon's Park is situated 35 minutes from Little Current.
~From Hwy 6 or 17, turn on to Hwy 6 at Espanola. Follow Hwy 6 through Little Current & Manitowaning. They are 15 minutes from Manitowaning, just before the Hwy 542 junction.

http://my-baby-is-an-angel.blogspot.com/2010/04/reflections-of-our-final-day.html


~Words cannot describe the searing, heart-clutching pain that a parent feels in their chest the very moment that their baby has been 'pronounced'.

"I'm very sorry, but he's gone......."

How do you take another breath, knowing your beloved has just taken his last? How can you fathom a future without this little person by your side, sharing first smiles, sloppy kisses, and giggles galore?

One can't help but wonder "what do I do now? How will I get through this...."

The entire day was just a blur, with moments of vivid memories. I look back at our photographs taken during that final afternoon. The photographer's lens captured those heart wrenching images as we had to do the unthinkable.

"How do you say farewell, when you've just held this tiny little being in your arms for the very first time since he entered this world, outside your womb?"

I remember walking out of the hospital that night, with empty arms. I hadn't taken a single breath of outdoor air in more than a week, since the day I entered the hospital to give birth 9 days earlier. I stayed by Bennett-Chadlen's bedside night and day, never wanting to be too far away in case the worst should suddenly occur. I wanted to be right there with him should they need to page me.

I stepped outside and took in a huge breath, and held it for a few moments. I could not believe what was happening.

"It's not supposed to be this way".


I was clutching a stuffed bunny in place of him, an Easter gift to Bennett-Chadlen from his brothers.

In the days and weeks that followed I was able to look at the photos and feetprints.  I cherish the hand and foot moulds that were made with my hands, and the hands of Nimkee's siblings.

All of these items make him 'real'.

I cannot hold his hand again, but I can see his tiny fingers and feet....a lock of his hair....his gold embossed feetprints with the 6 gorgeous toes....all thanks to the little things that were done for us before we left the hospital.

~Imagine knowing that your unborn child will be born with a devastating birth defect requiring a NICU stay immediately following birth.


~Imagine giving birth to what you believe to be a healthy baby, during what you anticipated to be a routine labour and delivery---only to have your newborn baby go into fetal distress as he/she makes her debut into your life.


~Premature birth is another cause of newborns which will often require a very lengthy stay of several months while the baby endures a lot of intensive care while the parents sit by, watching, waiting....praying.


Instead of being handed over into your loving and waiting arms, your newborn is whisked away abruptly, with few words but---"we're very sorry, but we'll do everything we can".  How do you not panic in such a state??  


This is why I am so dedicated to reaching out and helping other families in a similar situation.  It's such a difficult and 'impossible-to-describe' scenerio.


If a family is lucky, their baby receives the necessary treatment and heals quickly, returning home and back to their parent's waiting arms.....but for many this isn't the case.  NICU's all over the world are filled with little ones that are often critically ill, or require a very lengthy NICU stay.  


These families find themselves in a place that they could never have imagined, beyond their worst nightmares.  There is no way to prepare yourself for this journey.  Please help me, to help other families that will have babies that require a NICU stay.


A little bit of comfort goes a long way, and can touch a family's heart forever.


~Our First Kiss, he was 5 days old.  I still hadn't held him in my arms~


~ Gzaagin Nimkee ~ We love you ~ Forever in our hearts ~ ♥ ~Tattooed on my soul~ ♥ 

Monday, August 9, 2010

~PROJECT SWEET PEAS featured on Good Morning America!!



http://abcnews.go.com/GMA/Refresh/video/pepsi-refresh-winner-project-sweet-peas-11257915


~On the morning of Tuesday, July 27th, ABC network's Good
Morning America show did a feature story on Project Sweet Peas

worthy mission to help families with babies in the Neonatal Intensive Care Unit
(NICU) at various hospitals.  Our goal is to be able to provide gift bags containing comfort and support items to
the many families that have a sick baby in the hospital, instead of at home in their loving arms.
Project Sweet Peas is an organization made up of several families that have been through the NICU experience, and sadly, many families like my own--have lost our babies to various illnesses or birth defects.

Because we know what it feels like, we are extending our comfort and support to others, so that we may be able to touch their lives and let them know that they are not alone in this very difficult, healing journey.

Project Sweet Peas specializes each bag for a boy--or a girl--and will also customize the various bags by holiday seasons, short-term or long-term NICU stays, and Memorial bags for those babies that grow their wings much too soon.

If you have any questions, or would like to donate, or request a bag for a loved one, please contact me here, or email me at melissa@projectsweetpeas.com

Help spread the word about my project NIMKEE BLESSINGS, by joining my facebook page at this link:  http://www.facebook.com/NIMKEE.BLESSINGS

~Love, Peace, & Nimkee Blessings from my family, to yours,
Melissa xxoo

*More information may be found by following the various embedded links in this post*

**All proceeds from NIMKEE BLESSINGS will be donated to The Hospital for Sick Children, aka Sick Kids Hospital, in Toronto, Ontario, Canada.

Sunday, August 8, 2010

~OUR STORY~

http://projectsweetpeas.com/NimkeeBlessings.aspx


In July 2006, I found out that I was unexpectedly expecting.  I was scared, nervous, but elated and hopeful that this pregnancy would mean great things for me and my family.  I embraced this new life that was growing inside of me, looking forward to our future together.  I imagined what the next summer would be like with a new baby here.  I pictured the next mother’s day with a little one in my arms.  My boys were happy and excited….life was good.


I called my midwife and arranged to begin my prenatal journey as healthy as possible.  One day she was here to draw some blood for regular prenatal tests and she asked if I would like her to draw a little bit extra to send away for a ‘maternal serum test’.  I had never opted for this in the past, but this time I said, “Sure, go for it, it will give me one less thing to worry about.” 


Several years ago in August of 1999, I delivered a stillborn son named Noah-Alexander. I already had 2 sons, and I went on to plan 2 more pregnancies after his birth.  Each pregnancy was very nerve-wracking for obvious reasons, and every day of those subsequent pregnancies was a joy, and a struggle, and resulted in 2 more healthy sons.  I told myself that lightning won’t strike twice and tried to relax and enjoy this new journey.


I remember the day that my midwife phoned to let me know she had some results for me.  She stopped by to explain to me that there was a 1:8 chance of my baby having Trisomy 18.  I had never heard of it.  She told me it’s a chromosomal abnormality and that she had made me an appointment with a genetic counselor in the city nearly 2 hrs away.  I attended that appointment and was told what Trisomy 18 is, and was offered termination, and/or a chance to have an amniocentesis performed.  I opted for the amnio to find out for sure what we were possibly dealing with.  I could not envision myself spending the duration of the pregnancy wondering what might happen.


I went to Toronto, nearly 8 hrs south of here, to North York GeneralHospital to have the amnio performed.  I was frightened about the risks, but everything went fine.  3 days later I received the preliminary FISH (fluorescence in situ hybridization) test results which indicated that Trisomy 13 was detected in his cell sample.  The final results came back a couple of weeks later and told me that I was expecting another son, and he did indeed have Full Trisomy 13, aka Patau Syndrome, in EVERY single cell of his entire body, meaning he had 3 copies of the 13th chromosome instead of just the 2 that he should have received—one from his father, one from myself.


More information about Trisomy 13 and Bennett-Chadlen can be found here at this site: http://www.livingwithtrisomy13.org/MemoriesOfBennett.htm


I chose to embrace my son’s diagnosis and give him as much love and comfort as I could during our time together.  I was told that he may be premature, stillborn before Christmas, and I was very frightened as I remembered what I went through with Noah-Alexander so many years ago.  This time I was prepared and decided to preplan his funeral arrangements in the event that it should occur suddenly.  I wanted to be able to give him the type of service that I hadn’t been able to give to Noah.  I knew that when or if it should happen,  that I would be recovering from childbirth, and grieving, possibly unable to think clearly and plan as thoroughly as I would like to.  I didn’t want to have any regrets.


I travelled to Toronto once again to have level II ultrasounds, and fetal echocardiograms to see if any birth defects could be detected.  The doctors had noted the possibility of a non-severe Congenital Diaphragmatic Hernia.  I requested to have a Fetal MRI to see what we were dealing with.  He had no organs up in his chest and his lungs developed normally, which was great news!  These CDH babies do require immediate intubation at birth so that they don’t cry and possibly swallow air which could cause the internal organs and intestines to swell up and make it more difficult to fit everything back in place during the surgical repair. They were unable to see clearly if there was indeed a CDH, but we prepared for that just in case.
I made arrangements to have the remainder of my prenatal appointments in Toronto at Mount Sinai Hospital, and Bennett-Chadlen would be transferred across the road and treated at the Hospital for Sick Children in TorontoOntarioCanada.


Bennett-Chadlen was born on March 29th, 2007, 2 days overdue. He was very alert and responsive following birth and intubation and did not require the paralyzing sedatives because he was not fighting the ventilator.  When I was able to see him for the first time, I spoke his name and he turned his head to look at me.  He heard me and knew I was there!  It was the most amazing feeling in the world.  My friend quickly snapped a photo of him looking right at me, and another one looking at her because he saw the flash of the camera.  I cherish these photos more than words can express.

The surgeon came over to Mount Sinai to see him and told us the wonderful news that he appeared to be doing very well and may not require the surgical repair.  He said he was transferring him to do further tests, and would be able to extubate Bennett-Chadlen if the hernia was not detected.
The next time I saw my boy later in the day, he was unresponsive and on full life-support.  He fought hard and lived his life in 8 days, passing away due to unexpected complications on Good Friday,April 6th, 2007.  Easter is always a period of remembrance, as well as his birth and angel dates.


We miss him very much, and are very happy that we had the chance to hold him and sing to him as he passed away in our arms, surrounded by his siblings, family, and dear friends. 
We had a chance to have a prenatal photo shoot taken by photographer Heather Renee Morgan of Lifespark.ca, and she also did a photo shoot while he was in the NICU.  On his final day we had a photographer come from a wonderful organization called Now I Lay Me Down To Sleep and he took photos of all of us surrounding Nimkee with unconditional love.  I highly recommend that all new mothers-to-be of babies who have been prenatally diagnosed with any type of possible complication should be sure and get these photo mementos to hold onto.  I have made my photos into video montages, and display Bennett-Chadlen’s keepsakes in my home so others can know he is still very real to us.


I want to be able to reach out and give love, comfort, and support to others as they to endure the difficult NICU days.  It’s difficult to prepare for such an emotionally charged period, but we will strive to do our best to provide others with things that will help make the NICU experience a little more positive, comfortable and memorable.


We will also make available some Bennett Blankets and Bennett Bunnies to give as sibling gifts.  My boys have these and they sleep with them every night, drifting off to sleep cuddled in their baby brother’s “hugs”.


Much love, peace, and Nimkee blessings to you and yours……Melissa & family